Sytuacja, w której znajdują się rodzina Marcela cierpiącego na leukodystrofię Pelizaeusa Merzbachera jest absolutnie wyjątkowa. Ta podstępna choroba prowadzi do stopniowego zaniku mięśni, funkcji życiowych i ostatecznie śmierci. Dlatego, gdy poproszono nas o nagłośnienie zbiórki pieniędzy na remont łazienki, w której nie ma nawet ogrzewania, przez jedną chwilę nie zastawialiśmy się czy warto zająć się tym tematem. Wiedzieliśmy, że trzeba zrobić wszystko, by wesprzeć samotną matkę borykającą się z trudem opieki nad nieuleczalnie chorym synem.
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